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Louise Bergeron, Canadian Arthritis Patient Alliance (CAPA)

Louise Bergeron is on the Steering Committee of the Canadian Arthritis Patient Alliance (CAPA) and is Co-Chair of Research and Communications. She also sits on the board of Directors of Arthrite Montreal Arthritis. As a patient representative, she is a member of the Systemic Autoimmune Rheumatic Diseases (SARDs) working group in Research Priorities.

Her home is Ile Perrot, an island just west of Montreal. She is married and has a son and daughter. She received her BA in Communications Studies at Concordia University.
In 2000, she was diagnosed with Systemic Lupus Erythmatosus. Unfortunately, arthritis has not only affected her but it is a family affair. Both her parents have arthritis, her daughter suffered from a strep induced reactive arthritis at the age of 5; her sister has recently been diagnosed with Scleroderma. This very intimate experience with arthritis made her aware of the need to advocate for research into arthritis to improve outcomes and quality of life for sufferers. She truly believes the voice of the arthritis patient is important and can offer a unique perspective to those involved in research, healthcare, and government policy.


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